Tuesday Afternoon
Last night my son came in the living room and said, “I love Tuesdays because we get to watch something fun and we always have popcorn.” He looked so happy. And that really struck me, because up until about five months ago, Tuesdays were not fun. Tuesdays are the day I do my infusion treatment for my CVID. I’ve blogged a couple times on how my attitudes have changed since I started treatment for my CVID. I wrote in a previous post how I started thinking of my IgG infusion as immunobuddies rather than an enemy making me feel fatigued, achy and stealing my night and part of the next day away. I also stopped looking at Tuesdays like I wanted to skip them altogether. Instead, I started to think about how I could make this routine into something a bit more...
Read MoreCount Your Blessings
Here in the US it’s Thanksgiving week. It’s a time when a lot of people sit down and consider their lives and give thanks for what they have. I’ve struggled with this a lot since the diagnosis of my illness. It’s hard for me to thank the Lord for things that other people don’t have. Well-meaning people were telling me to be thankful I wasn’t sicker. But, when I joined support groups for my disease, there were plenty of people who were more ill than me. Did I feel I was more blessed than them? People thank God for their houses and cars and their health. They thank Him for their secure job, their wonderful marriages, and their perfect kids. I mean, we’re told to count our blessings. But, what if what we think of as blessings aren’t limited to these...
Read MoreYou’ve Got a Friend In Me
The other day, sick again (seriously!) I was at the doctor’s office seeing a fill-in because I couldn’t get into see my regular physician. As often happens, she didn’t have a clue what CVID was—and she wasn’t really up on primary immunodeficiency. And when I said IgG replacement a tiny light went on—but still, not getting it. (I make time to mention that she’s seen me twice before and hadn’t a clue). If you don’t know about CVID, then here’s a window: I went from a sore throat at 2:30 to full on bronchitis by 4:00. Colds hit fast, and hard! Considering I had pneumonia in September…well, you get the idea. It really wears down a person. Anyway, I’m not blogging to come down on a doctor or whine about colds (tempting…but no). I’m...
Read MoreThese Eyes
Comparisons happen in our minds all day long. How much more caffeine is in that 24 oz latte than the 16 oz? Is that spider bigger than the one I saw yesterday, or is that one of its many babies? If I use that super extensive homeschool curricula, will I churn out a gifted student poised to take on the world? (Can you tell we’re getting ready for our first year of homeschooling through high school?). Comparisons are natural—it’s something our brain does without thinking about it. And that’s where the danger lies. Our eyes. I might see a house that is larger than my own and think about all that extra space I could use and become discontent. Or, see that super in-shape person on TV and be tempted to feel badly about my body. In our subconscious state,...
Read MoreWhat a Fool Believes
Have you ever noticed how much people like to give advice? The other day my son had the hiccups—all day. We had tons of errands, and every time someone heard him hiccup, they’d offer him a sure-fire way to get rid of them. Wouldn’t you know it, every bit of advice was different from the next. These sage words came from a receptionist, a nurse, a doctor, the grocery store clerk, his sister and myself. Hold your breath. Stand on your head. Drink a glass of water from the other side (okay…what? All that gets you is a wet front!). Hold your nose. Rub your tummy. Take long, controlled, deep breaths. Oh, this one is from my sister and passed on by me—eat a spoonful of sugar (he chose not to, sorry Chelli). He was assured each of these was a proven...
Read MoreMamma Said
I’m sure there are a lot of blogs about Moms going up this weekend. And I’m no exception. But, I’ve got a bit of different take. A year and a half ago I became a different kind of mom. I’m now a mom living with chronic illness. Up until then, I was a get-er-done mom. A homeschooling mom. A supportive mom. A writer mom. I kept a fairly clean house, I kept us organized and on track. But then, my CVID (Common Variable Immune Deficiency, or Hypogammaglobulinemia) went full-blown. And I went down. Hard. I’ve had to change my idea of what a mom is and what a mom does and adjust my expectations. My kids have always been good kids. Thoughtful and considerate. But, things have changed with them during all this, too. My kids notice when I don’t feel great. They...
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